Did you know that Chiari Malformation is as common as Multiple Sclerosis? How much have you actually heard about Chiari? In our own church, I have met three people who are living with this debilitating condition. In just the last few days, I found out that another friend I have known for many years has battled Chiari as well. September is Chiari Awareness Month.
What does that have to do with us as a church? Well, on September 15th, we have the opportunity to make a difference in the lives of those living with Chiari. Here is some information from the website, including a message from our very own Skyler Macedo:
The Conquer Chiari Walk Across America is an annual fundraising and awareness event comprised of a series of local walks held on the 3rd and 4th Saturday of September.
In 2017, the event was held at 80 locations, involved more than 10,000 participants, and raised over $450,000 for research and other patient centered programs. The 11th annual walk will be held on September 15th & 22nd 2018. We are proud to say that, to date, we have funded over $3.5 million in Chiari research. As always, it is our goal to have at least one walk in every state.
Message from Skyler: Hi, my name is Skyler and I am ten years old. I was diagnosed with Chiari Malformation at ten months old. I had my first brain decompression when I was two years old. I had to have another brain decompression when I was five years old. There is no cure for Chiari. Please help me raise awareness and much needed funding. My hope is that someday there will be a cure, or at least better management choice. I thank everyone in advance, not just for me but for all Chiarians. Sincerely, Skyler
There are several ways that we can help… There is a table set up near the offices that has bracelets, key chains, and t-shirts for sale. There are also sign-up sheets for the walk and donation forms for those who would simply like to make a donation. As a church family, I believe we can show our support to those who are living with Chiari by joining them on this important day. The walk itself is at the Aberdeen Lake on the 15th, and you can walk at your own pace. But even if you can’t walk, you can come out and share the day with these dear friends. Continue to keep them in your prayers as they deal with this horrible condition daily.
Also, let me encourage you to plan to attend Homecoming on October 14th. Former pastor Leon Hawks will be our guest preacher. Plan to come and stay for the Homecoming meal afterward.
Finally, be in prayer about how you should be involved in the West Virginia Mission Trip October 21-26. We still need people to go. We also need monetary donations to purchase supplies, and we need everyone’s prayers. Time is running out, but it is not too late to get involved. See me as soon as possible so we can discuss your opportunity to serve in this wonderful mission trip.
In Christian Love,